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Home:   Health:   Conditions and Diseases:   Chronic Illness   

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  •  Coping with Chronic Illness  - http://www.alpineguild.com/COPING%20WITH%20CHRONIC%20ILLNESS.html
     An academic paper discusses illness in terms of stages, with a description of each in terms of its relevance to patients.
  •  Chronic Illness Coping  - http://www.mindpub.com/topic16.htm
     Lists articles including lessons from Christopher Reeve, treatment of whole person, psychological control, and coping techniques.
  •  Learning to Live with a Chronic Condition  - https://www.mylifepath.com/producer/documentlibrary/MR15300.pdf?sec=medsup&pg=help
     Patient advice on communication with the health team, deciding on a treatment plan, and minimizing costs. From the Lifepath Information Series.
  •  Center for Research on Chronic Illness  - http://nursing.unc.edu/crci/
     Current research by the Carolina School of Nursing, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnerable people.
  •  Coping with Chronic Illness  - http://www.fathersnetwork.org/647.html?page=647&SESSION=ab227735c199fab81f0a5e757533e8d4&s=0
     The Fathers Network on how to deal with physical, emotional and spiritual aspects. Applies to anyone with a longterm disease.
  •  Yoga For Chronic Illness  - http://www.cancerlinks.com/Yoga/illness.html
     Article explains how yoga helps to maintain and restore health by stretching and breathing.
  •  Stanford Self-Management Programs  - http://patienteducation.stanford.edu/programs/
     Center develops, evaluates, and disseminates community-based, peer-led, programs for people with all kinds of chronic diseases. Part of School of Medicine, Stanford University, California.
  •  Chronic Disease Management  - http://www.calgaryhealthregion.ca/cdm/
     Model based on cooperation between providers to improve patient health and outcome. The Calgary Health Region also advises on regional strategy, community care coordinators, and patient class details.
  •  Chronic Disease Prevention  - http://www.cdc.gov/nccdphp/overview.htm
     Overview by National Center (USA) offers statistics, state programs, risk surveillance and risk factors per state.
  •  Chronic Illness Tips  - http://showcase.netins.net/web/fmd/chronic/
     A personal account of strategies for daily living.
  •  Dealing with Illness and Disability  - http://www.hackney.gov.uk/index/life/yl-illness.htm
     The London Borough of Hackney offers support through council, community, and government agencies in the fields of jobs, leisure, transport and allowances.
  •  Illness, Disability and Social Inclusion  - http://www.eurofound.eu.int/publications/files/EF0335EN.pdf
     Evaluates policies on education, social security, employment, anti-discrimination, and independence. From the European Foundation for the Improvement of Living and Working Conditions. [PDF]
  •  Chronic Disease Surveillance in Canada  - http://www.phac-aspc.gc.ca/csc-ccs/pdf/hscchronic_disease_surveillance_background_paper_e.pdf
     Background paper also proposes multi-partnered data base renewal (2003).
  •  Living with Long Term Illness  - http://www.dva.gov.au/health/health_promotion/chronic.htm
     Explains how lifestyle changes can be effective in self-managing a condition.
  •  Improving Chronic Illness Care  - http://www.improvingchroniccare.org/
     Research and resources, including a model to promote interaction between patient and care givers. Essential elements are the community, self-management support, decision support and clinical information systems.
  •  Chronic Conditions  - http://www.seniornet.org/php/default.php?ClassOrgID=5337&PageID=5541
     Advice on managing the health team, staying as healthy as possible, trying complementary therapies, maintaining a sense of humor, working at being optimistic.
  •  Family Caregiver Alliance  - http://www.caregiver.org
     National Center on Caregiving offers fact sheets, advice, research reports, public policy briefs, and newsletters.
  •  Chronic Disease Management  - http://www.healthservices.gov.bc.ca/cdm/
     British Columbia resources for physicians, patients and researchers. Includes success stories, reports, research and Chronic Care Model.
  •  Chronic Ill Net  - http://www.chronicillnet.org/
     Patients, doctors and researchers discuss diseases: Gulf War Syndrome, Chronic Fatigue Syndrome, AIDS, biological and chemical weapons. Many articles.
  •  When Parents Fall Ill  - http://brightfield.org.uk/living/whenparents.html
     Dealing with the child's resentment and embarrassment. The importance of key events and acknowledging the child's own health complaints.