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Home:   Health:   Conditions and Diseases:   Nutrition and Metabolism Disorders:   Porphyrias   

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Sites:

  •  Porphyria Page  - http://www.uq.edu.au/porphyria/
     A patient guide for all people with this disorder. Compiled by Professor Michael Moore.
  •  The American Porphyria Foundation  - http://www.enterprise.net/apf/
     Non-profit organization advancing awareness, research, and treatment of Porphyria. Fact sheets and links to related resources.
  •  King George II and Porphyria  - http://www.mhhe.com/biosci/ap/seeleyap/cardio/reading20.mhtml
     Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
  •  Canadian Porphyria Foundation  - http://www.cpf-inc.ca/
     Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
  •  Diagnosing the Porphyrias  - http://www.ohsu.edu/som-hemonc/handouts/deloughery/por.shtml
     An article by Thomas G. DeLoughery, Associate Professor of Medicine.
  •  Porphyria  - http://www.thedoctorsdoctor.com/diseases/porphyria.htm
     A look at the different types of these disease and some of their characteristics.
  •  EPP  - http://members.tripod.com/~Alzuko/epp.htm
     Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
  •  Me and AIP  - http://hometown.aol.com/heyjude957/aip.html
     Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
  •  Prophyria in Charlottesville  - http://www.people.virginia.edu/~rjh9u/porphyriaemail.html
     An e-mail sent to Professor Huskey from a person working on a rescue squad.
  •  Suite 101  - http://www.suite101.com/welcome.cfm/porphyria
     Offers links and articles about Porphyria.
  •  Porphgroup  - http://groups.yahoo.com/group/porphgroup/
     An e-mail group at Yahoo dealing with the metabolic disease porphyria.
  •  Porphyria  - http://groups.yahoo.com/group/porphyria/
     From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
  •  Pediatric Oncall  - http://www.pediatriconcall.com/fordoctor/diseasesandcondition/porphyrias.asp
     Information on porphyrias including the various types and its management.