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Langer-Giedion Syndrome Apert Syndrome Craniosynostosis Parry-Rombergs Syndrome Stickler's Syndrome Treacher Collins Syndrome Cleft Lip and Palate

Sites:

The Personal Side of Craniofacial Differences  - http://members.tripod.com/~Craniofacial/index.html  Personal accounts of living with craniofacial conditions, and related webrings.  Acne Support Group  - http://www.stopspots.org/  Information and support on acne, including top ten tips, beauty tips and problems.  FACES: The National Craniofacial Association  - http://www.faces-cranio.org  Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.  Moebius Syndrome  - http://www.moebius1.org  Moebius Syndrome support, information and resource site.  Sincere Meditations  - http://www.davidroche.com/lamott.htm  Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.  AboutFace  - http://www.Aboutfaceinternational.org  International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.  Changing Faces  - http://www.changingfaces.co.uk  UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.  Support Works Online  - http://www.supportworks.org/cat806.htm  Resources to find or form support groups related to facial difference. Information on medical research.  The Craniofacial Society of Great Britain and Ireland  - http://www.cfsgb.org.uk/  Information about the society, which is a multidisciplinary forum for specialists.  The DRM WebWatcher: Facial Differences  - http://www.disabilityresources.org/FACE.html  A Disability Resources monthly guide to online resources about craniofacial differences.  Birthmark Support Group  - http://www.birthmarksupportgroup.org.uk/  From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.  The New Face Foundation  - http://www.newfacefoundation.com  A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate.  Cancer Of The Eye Linkline (CELL)  - http://pages.zoom.co.uk/cell/index.htm  UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.  XP Support Group  - http://xpsupportgroup.org.uk  UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.  Children's Craniofacial Association  - http://www.ccakids.com  Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.  Let's Face It USA  - http://www.faceit.org/  A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.  John Hopkins Center for Craniofacial Development and Disorders  - http://www.hopkinsmedicine.org/craniofacial/  Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details activies at the Center.  Beneath the Surface  - http://beneaththesurfaceweb.com  Offers support and understanding to individuals of facial difference.  Crouzon's Bridge of Hope Foundation  - http://www.crouzonsbridge.org  Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome.  Foundation for Faces of Children  - http://www.facesofchildren.org  Expert information for families and health care professionals about craniofacial conditions.