- Alliance of Genetic Support Groups - http://www.geneticalliance.org/
National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
- Chromosome 22 Central - http://www.nt.net/~a815/chr22.htm
Support group for families who have children with any chromosome 22 disorder, including trisomies, cat eye syndrome, translocations, deletions 22q11, 22q13, VCFS, Digeorge syndrome, rings and unique malformations.
- S.O.F.T. - http://www.soft.org.uk
A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.
- S.O.F.T. - http://www.trisomy.org/
Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.
- Cornelia de Lange Syndrome (CdLS) Foundation Outreach - http://www.cdlsusa.org
Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
- Chromosome 18 Issues - http://pub6.ezboard.com/bchromosome18issues
A support and awareness discussion board for people affected by this disorder.
- Ideas - http://IDIC15.ORG
A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
- Parents of Polydactyly and Webbed Children - http://pub55.ezboard.com/bparentsofpolydactylychildren
A support board for those parents of children born with extra toes/fingers as well as webbing. A place to learn new information and make friends with others
- Yahoo Groups Floating Harbor - http://groups.yahoo.com/group/floating_harbor/
An active support site for the parents and families of children with Floating Harbor Syndrome.
- The Rainbow - http://pub10.ezboard.com/btherainbow
A forum for people who have chromosome abnormalites to show support, give advice and comfort.
- Chromosome Help-Station - http://www.chromosomehelpstation.com/
Information on rare chromosomal disorders. Support and advice for families.
- Distal Trisomy 10q Families - http://trisomy10q.darylanderson.com
Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.
- Who is EPI ? - http://www.porphyria-europe.com
The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria.
- Forum for Patients with Myotonic Dystrophy 2 - http://groups.yahoo.com/group/MyotonicDystrophy2
A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
- Trisomy 18 Moms - http://www.T18moms.com
A place to list your Trisomy 18, Edwards syndrome memorial site , get help making a website, to share your unique story via the web.
- Trisomy 18 Angel - http://www.trisomy18angel.com
This site was made in memory of our daughter Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18.
- Thomas Scott Davidson - http://www.geocities.com/thomasscottdavidson/index.html
This is a memorial website for Thomas Scott Davidson who died from Anencephaly.
- Trisomy 18 Support Online Community - http://www.trisomy18support.org
Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.
- Yahoo Support Group for CMT-HMSN-HNPP - http://health.groups.yahoo.com/group/CMT-Support/
A very active support group that prides itself on helping its members through the good - bad days and posting the latest CMT/HMSN/HNPP research information available on the web.
- X-Linked Alpha Thalassemia M/R Syndrome - http://health.groups.yahoo.com/group/atr-x
Features a Yahoo! group for family support for individuals caring for others affected by "Alpha Thalassemia Mental Retardation Syndrome (ATR-X).
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